We started this week being very angry with our NHS 111 service as it proved to be very unhelpful chaos. E had just tested positive for covid but thought she'd possibly had it for more than a few days already. She wanted to try and get the extra antiviral pills and as a severe ME/CFS sufferer knew she should ask 111 immediately as it was a Friday afternoon. An out of hours GP phoned her back, but not till the early hours of Saturday morning and they sent her through an electronic prescription at 4am which E sent through to us so she could get some sleep and we would see as soon as we woke up. After about three hours for Hubby and me and joined by Daughter and also Son phoning around almost all the chemists in East Anglia, checking online the pharmacy chains and even driving to our nearest we discovered nobody stocks this, not even the hospital pharmacy, and it could possibly be ordered in but that would take a week, and as it should be taken within the first five days it could do a lot more harm than good.
E phoned 111 back to tell them we couldn't fill that prescription, was there an alternative.... another disturbed night waiting for the call back that didn't happen....... Sunday lots of different calls, one nurse saying the system is for the doctor to make the request to a special covid unit that will dispense and deliver and she gave E a direct number as E already had the prescription. E phoned that number who said they are an independent unit who can only deliver within the Berkshire area and have no idea who operates within Suffolk! E tried 111 again, each time having to explain the situation, her diagnosis and all her symptoms again, and then had lots of arguing with call handlers, nurses and eventually a doctor who denied the earlier call had happened as it hadn't been logged and one person on the phone argued with E that she had ever been diagnosed with ME as her records showed it as CFS which she thinks isn't so serious, even though the medical council have them categorised as the same. Finally a doctor phoned and said E didn't qualify and dismissed her.
How can one doctor say she didn't qualify when another doctor had already issued a prescription? Do they know how much energy, lack of sleep and stress this has cost her?
So enough is enough and when there's nothing more you can do you have to move on!
I'm pleased to report that all three of us have now tested clear of covid.
Did I ever tell you about my love of liquorice, never the bitter strong root flavour like the Pontefract Cakes, but the sweet Berty Bassets Allsorts type.
I could easily get hooked on them, and a large amount could clash with some of my meds, so I rarely get them and ration them when I do.
Tuesday was our 53rd wedding anniversary. Congrats to us!
I had my monthly blood test booked in the morning and Hubby had his annual check with the GP in the afternoon. We know how to celebrate hahaha
Bit of a shock when our neighbour/friendA called hubby in to help after a fall and called his daughter-in-law too, she took him to hospital and they discovered he'd had a stroke. He's being well looked after there and Hubby is looking after things for him here and has also been to visit.
Wednesday evening it was nice to go out after being in confinement. Our usual pub had a music bingo event on, one we hadn't seen before, tickets were far too expensive so very few people joined it which I guess meant his cash prizes were going to be meagre. The music was only motown. Needless to say we didn't join in and had an early night.
When E moved in she had already crocheted her favourite bag and brought with lining material for it but had no energy to make it and asked me if I would do it for her.
My craft room got far too hot to work in during all those heatwaves and I finally started making it much more recently. It was slow going as I didn't want to use the sewing machine while E was asleep and then when I was nearly finished I had covid and wouldn't touch anything I didn't need to.
I finally finished it and although you can't see inside clearly it has two large and two small internal pockets.
I saw it online after she died as then anything related to her was all over social media. She made this cake in the film Steel Magnolia. It's a whole can of fruit salad including the juice together with an equal amount of sugar and self raising flour. Mix and put in a lined cake tin. Oven 180°C for about 45mins. That's it. Amazing.
Bye for now.
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